Finally, a spiral-bound workbook created specifically for families managing Food Protein-Induced Enterocolitis Syndrome (FPIES) to help parents and caregivers stay organized and keep track of everything in one place! The FPIES Workbook for Parents & Caregivers is conveniently sized at 5”x 8” making it easy to transport and share with others (such as caregivers, teachers, and healthcare providers), allowing for seamless communication of your child’s health needs.

 

This unique resource is a must have tool in your FPIES “toolbox” and provides the necessary journal pages to keep track of:  Emergency Contacts, Food & Symptom Logs, FPIES Reaction Logs, Other Reaction Logs (such as IgE Allergies, Medications, Supplements), Hospital Food Challenge Notes, Safe Lists (for Foods, Formulas, Medications, Supplements, Breastfeeding Mothers, and Art Supplies), Preferred Grocery Stores, Safe Restaurants, Doctor Visit Notes, Travel Planning, Safety Checklists, Healthy Coping, and Favorite Recipes. In addition, this workbook includes many helpful FPIES resources utilizing both evidence-based scientific research as well as the anecdotal experience of the author who is both a seasoned FPIES Mom and Registered Dietitian.

 

A Note from the Author:

 

“Where is the list?” My husband would ask, referring to the list of safe foods for our son with FPIES. My response was always frazzled because I did not have just one list, in fact, I had many lists located in multiple locations (hanging on the refrigerator, in my phone notes, and saved on the computer) but none of them looked the same! Then there were also lists for reactions, medications, supplements, doctor notes, etc.… I realized that I needed to get organized because I am not the only caregiver for my son. This “aha!” moment was my inspiration for creating the FPIES Workbook for Parents & Caregivers to help other families managing FPIES to find a sense of calm in the chaos.

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Best Wishes, Stephanie